I know it’s been a while since I last did this as I have been busy studying, but with all the developments regarding Dad over the last 6 months I felt that I must take the time and give you all an update.
In early August 2016 on a Sunday morning when we went to drop his paper off, we found him unconscious on the bedroom floor of his flat (MOTH was with me). We called an ambulance straight away and they arrived quickly. Initial assessment showed that he had a fever and a blood sugar level so high that their tester couldn’t read his levels. They took him to emergency at Bankstown Hospital, where he was admitted with pneumonia and delirium. They couldn’t determine if the high sugar triggered the pneumonia or the other way around. Either way, he was quite sick and was kept in hospital for about a week. He was discharged with antibiotics and insulin injections, which I had to give him each night as he wasn’t quite ready to learn to do it for himself at that point.
He was home for about a week and a half when we went there on the Sunday morning again with his paper. I noticed that he had all his clothes on backwards and he had a good chuckle when I pointed it out. He also said that the equal that he was using in his tea and coffee was terrible and made the cuppa’s milky. I looked in the cupboard and saw that he had been using cornflour instead of the equal, so I showed him the equal was in the sachets and he said he would be okay using them now – he just forgot they were in sachets. I had to leave and I asked if he would be alright until I got back that night around 8 to give him his insulin. He said he would be so I left and came home with all the shopping and stuff. He was on my mind all day, but I was going back that night so he wouldn’t be alone for too long.
When I got back to his place that night, the outside light wasn’t on so that was unusual, and as I got to the door, I noticed a note that his neighbour had left. She apparently found him wandering the street in the early afternoon and he was dazed and confused. She called an ambulance for him and he was taken to Bankstown emergency. We got down there and saw him, he knew who we were, but not much else and he wasn’t making much sense. As his blood test showed infection they tried to do a spinal tap to rule out meningitis and the like. They couldn’t get him into a good enough position to get the fluid. They tried again the next day but again couldn’t manipulate him into a suitable position for the procedure. They suspected sepsis, but this couldn’t be confirmed. They treated him for it anyway, better safe than sorry. He spent the next week in hospital and was having hallucinations – seeing a black snake under the bed, large flies flying around the room, etc.. He wasn’t well enough to go home on his own, so I arranged for him to go into respite at Yagoona Nursing Home until such times as we could arrange for home care services for him.
He continued to improve while in respite, and just as I was making appointments for ACAT assessments for him, he absconded from the nursing home and was wondering around Bankstown looking for his way to our place. When I finally got hold of him on the phone, I sent him back to the nursing home, who called an ambulance for him and had him taken to the locked psych ward at Bankstown Hospital. He was there for about a week while they assessed his needs and made arrangements for home services. They had to be sure that he could take his medication properly and could complete basic tasks at home.
He went home and had the services coming around a few times a week to check on him and take him shopping. He started catching a cab to where we shopped every Sunday morning so he could “bump into” us and get us to give him a lift home. He also sent his laptop over to get “fixed” by our son, but there was absolutely nothing wrong with it, he was struggling to remember how to use it.
This went on for a couple of weeks, until a Monday late in October when I got a phone call from the Diabetes Clinic at the hospital, saying that Dad was more confused that usual and that he couldn’t remember how to use his BSL tester. She took him to emergency and he was admitted from there with confusion and high blood sugar. They did an MRI and could see the evidence from his old strokes, but other than that all was okay. They did another MRI five days later when his confusion worsened and found that he had had an “embolic shower”, showing that he had many clots throughout his brain. This showed that the clots are forming elsewhere (heart) and travelling to the brain. There was no other option but to put him into full time care once he stabilised.
He moved to Casa Mia Aged Care late November and has been in the locked dementia ward. He has been unable to communicate with us or staff, but has been co-operative. Unfortunately though, he has started to sleep all day and roam the halls at night. One night he fell asleep sitting in one of the chairs and then fell forward out of the chair. There was no apparent damage apart from a swollen nose and a small graze to the head. They changed his sleeping medication in the hopes that it would change his patterns, but he is still drowsy all day and awake all night.
He stopped eating his food last Thursday (12/01/17) and got more and more drowsy, not even responding when Allan and Julie went to visit and tried calling him and waking him. They expressed their concern to staff and staff were looking into it. On Monday 15/01 the nursing home called and said that he hadn’t eaten for 2 days and that they are concerned as he is more drowsy. They told us they had called the doctor for him and asked us if it was okay for him to be transferred to hospital. At about 11:30 Monday night, I got a call from the Registrar at Bankstown emergency letting me know that Dad was there and was being admitted and treated for pneumonia. MOTH and I went to see him Tuesday morning and he sounded quite chesty and we couldn’t rouse him at all. The staff told me he only had a pain response. When Allan and Julie saw him that afternoon, he was semi-conscious and moaning, still unresponsive to voice.
Today (Fri 20/01) we had a family conference with his treating doctor and registrar. They say they have changed his antibiotics and hope that this gets the infection under control as it has worsened slightly. He is also showing inflammation but this is probably gout as he seemed to be sore in the usual gout sites. They were putting in a Naso-gastric tube today to start giving him some nutrition as it has now been about a week since he has eaten and they feel that he might have a better chance at recovery with some nutrition. We’ll just have to see how that goes, but we did warn them about how he pulls tubes and every thing out when he has the chance so they are going to put him in special mittens in the hope that this prevents him pulling out the feeding tube.
It’s all wait and see at this stage. We just need to see if the nutrition aides in his recovery and helps him fight this infection. It’s not looking great at the moment, but we have said to them to take all necessary interventions to make him comfortable, but if things take a turn for the worse to not resuscitate him. They have said that if they did need to resuscitate him that he would be much worse off and we feel that this would be unfair to him. Fingers are crossed that things get better. I’ll keep you posted.