Monthly Archives: August 2017

And this week presents…

Well, great news, I’ve got work as an electoral officer at the upcoming state election on the 9th September. It’s a long day so I will get the full pay plus meal allowance and training allowance, so I’m pretty happy to have some spare cash coming in soon.

I also got my roster for HSC Supervision at International Grammar School at Ultimo. That starts on the 16th October and goes ’til about the 4th November and I have quite a few shifts, so that will all help in the lead up to christmas. I have expensive taste in skincare so I don’t expect the family to provide that for me!

This visit with Dad was painful this week, he seems to have lost continence again, the poor lovely, just when he was getting better with it. It seems his meds are working too, as he was very quite, didn’t try to contribute to conversations. He just seemed to enjoy the sun as we had purchased him a new jacket to keep him warm when it’s windy.

As far as my cancer goes, we are still waiting for cells to grow back to confirm the diagnosis so I only have to wait around 6 weeks now, then we can go have another test and come up with a plan of action. I’ve come to accept it now and have stopped freaking out about it, as this will probably make it worse. As I said before, at least I’m not pregnant this time and we can sort it out straight away.

They boys are good, they have been loving me and supporting me through this (and many other things!). I couldn’t have asked for a better support crew. Love my boys very much xoxoxo

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Phone Calls in the Night

So I had just gone to bed last night and took my phone with me as I needed the alarm for the morning (I don’t like taking my phone to the bedroom, and my alarm clock is stuffed so no choice). I get a phone call from a number I recognise but couldn’t place, so I answered. It was the nursing home calling to say that Dad is crying and wants to come home. I just said to her to ring my brother and hung up. My dear brother then had the awkward call with Dad.

The nursing home shouldn’t be calling me for a start, they have instructions to call my brother for anything and everything. And secondly, they shouldn’t be calling us to deal with him when they are there to do a job. They told me they were going to medicate him for this, so medicate him and deal with it. Neither my brother or I are in a position to do anything about his situation. He got himself into this mess because he refused to take better care of himself, and I don’t think he understands that he can’t look after himself. I think we are going to have that horrible conversation with him where he’s going to be “I want to go home!” and we have to say to him that where he is, is his home, he doesn’t have anywhere else to go and can’t take care of himself anyway.

This all might sound harsh, but I am really exhausted with him. At least he can’t “escape” from where he is like he did when he was in respite last year. He was in respite after a stint in hospital and wasn’t able to go home and take care of himself. I was trying to get care in place for him and he just packed up and left, trying to make his way to my place! I can’t take care of him here, and he can’t be left alone as he is unable to take his medication properly, even though they are in Webster Packs. He also can’t control his eating, so he will end up with diabetes again, and because he doesn’t take the medication properly, he will be back in hospital within a week.

He is in the nursing home for his own safety and care. I know he would be hard for them to manage, but they are supposed to be medicating him to help him get through this. We will have a good talk to them when my brother and I go on Saturday morning, and I think I will take my phone number out of his file.

What’s been happening?

Well, there is so much to say as it has been quite a long time since I’ve been here. I’ve often thought to myself that “I should do a blog update”, and of course, that is all it has been, a thought. Just had a lot happening this year and not had the “energy” to do this. Now is the time to turn that around.

I’ll start with Dad. He’s in the nursing home at Padstow, and has made improvements from where we were in January/February. He’s walking again, with the assistance of a walking frame, which he also needs to get up and down. You can have a chat with him, but you might not always understand what he is trying to say to you. He’s also recovered enough to want to “fight” with other residents, so this is not necessarily a great thing. Those who know him know how combative he can be, but in a dementia ward, other residents don’t know what’s going on with him and he can get aggressive. Hopefully this doesn’t get any worse, or the staff will really have problems with him.

He lost a lot of weight back at the start of the year when he was really sick and unable to eat. He has, however, put a fair bit of it back on now that he is eating again. His diabetes went away, but I am starting to become concerned that he will have it again soon if he keeps eating the way he does. They must be letting him have too many biscuits and cakes throughout the day, because he will eat as many as he can get away with, when he shouldn’t really be having any.

We’ve also discovered that Dad is having low iron issues. He’s not eating the meat that they serve (I’ve seen it and don’t think I’d be too keen on some of it!), which doesn’t help. They do believe that he may have some issue with his bowel, such as a polyp that is bleeding, but we have decided not to put him through further testing as it will be too rough on him. We’ve decided to treat the low iron and we’ll deal with anything else if and when it arises.

Now for my health….. I recently had my annual Pap smear and blood test and got the results today. Cholesterol and blood sugar are really good, thyroid is good, but unfortunately, my liver functions are still elevated and not coming down even though I have lost weight. I was a little surprised by that, and the doctor has decided to investigate this further to be sure it’s no more than fatty liver. Not great, but if that’s it, it will get better the more weight I lose. I’ve lost around 16Kg so far, another 9 to go.

Unfortunately, the Pap results weren’t great either. It looks like the cervical cancer that I have been clear of for 20 years is making it’s comeback. I have to wait for the cells to grow back so I can have another Pap smear in October and see what the results show. I’m not too concerned at this stage, as it is very early days and we’ve detected it early, so it shouldn’t be too much of an issue to get rid of it again. I’ll take every treatment they offer to get rid of this and it will all be good again.

Anyway, the MOTH and the boy have been great about this, and they are going along well. The three of us make such an amazing unit, and we all love and support each other with whatever we have to deal with. We face everything as a family, and we’ll get through all this together.

Gonna love you and leave you there. Other things have gone on, and I’m sure much more will, but I won’t leave it so long ’til next time