Monthly Archives: August 2014

A Very Busy Week

Wow, what a week! It started last Saturday when I went to visit Dad as I hadn’t been to see him that week due to the norovirus doing the rounds of the ward. I still had to mask up to see him, and I kept sanitising my hands and everything I came in contact with. I even had a contingency plan for when I came home so that I stripped off in the outside laundry and changed into a robe, throw all my clothes in the washing machine, come in the house and hot shower scrubbing head to toe. I sprayed my shoes and my coat with Glen20 to kill any germs that might have lingered on them and left them in the laundry overnight to be sure. Dad was just getting over the virus when I saw him, so he was still quite bedraggled. He got stuck into the cappuccino that I got him, and he tucked into his salad for lunch which I took as a really good sign. I could stay with him long, but he was really happy to have seen me.

On Sunday we did a roast chicken and salad lunch for our dear friend Bernie. It was her birthday this week, and we always like to do lunch for each others birthday. It was good to kick back with a few drinks and chat, because even though she was over just the week before, we still had so much to catch up on. She’s been in our lives for so long we’ve become family. I love her like a sister. I got pretty smashed so I just relaxed after she left and let the boys fend for themselves for dinner, I was still stuffed from lunch.

Monday morning I spoke with my brother and said that I’d googled a list of Nursing Homes for Dad and that I would start checking out all the ones with vacancies between Parramatta and Penrith. I spent the best part of the day on the internet and phone, but the only immediate vacancies were for women, so that was no good for us. I was hopeful with one particular organisation, however it turned out their places were not in suitable places for us… We really want to keep him in between us geographically, so when I found a place at West Ryde, I didn’t even bother, but that was the only male vacancy I found.

I took it easy on Tuesday, just did a few things around the house as Wednesday was the big travel day again. I actually don’t mind the travel, but it really knocks the stuffing out of me. It’s nice and relaxing to sit back and read a book during the journey instead of stressing out in the traffic on a 2 hour drive. I don’t have it in me to do that kind of driving, and my bus and train connections all line up so I get a good “run” both ways. Lisa came and had lunch with Dad and I in the Kiosk and we all had a really good meal and laugh. Dads memory is coming back to him, but you do need to help him fill in the blanks (if you can!). We went back to the reading room to watch the tv after lunch and just chatterbox in general. I gave his toenails and fingernails a trimming this week, they were getting really bad, and I had been meaning to do them for him anyway. Afterall, I have given him a haircut, and I was going to take my nail clippers that week, but I just forgot. Anyway, it’s done now and they’ll be fine for a while now.

While I was visiting Dad, the Social Worker (Ming) called me to tell me of a vacancy for Dad with UnitingCare Mayflower Village, Westmead. She gave me Diedre’s name and phone number and said to give her a call. I couldn’t do it there and then, and was going to do it when I got home, Diedre actually called me while I was sitting at Katoomba station waiting for the train to return home. We made arrangements for me to go and visit the premises on Friday at noon, as I knew Thursday was going to be no good for anything. It all sounded good over the phone, but I was really happy to get a call with a place for him now.

Thursday was a write-off. I got up, dealt with MOTH’s mate, and went back to bed. I was totally exhausted and really needed some good catch-up sleep. I even knocked Amanda back for coffee when she called, and she’s my sis! I felt really slack, but I just felt like shit and was just waiting for his mate to leave so I could go and relax. MOTH was the one who suggested I go back to bed, and I didn’t feel guilty as I had taken Jordy for her walk. I went to bed at about 10am and didn’t get up until 1:40pm. I was still buggered though, and was determined to try making Bolognese sauce. I quickly realised that wasn’t going to happen, so MOTH put everything away for me and he got pork steaks out for dinner and we had them with wedges and jewels. I’m really grateful that he took over, I didn’t think I was going to be able to do anything. Even after dinner he did the cleaning up and took care of everything. I’m blessed to have him.

Today, MOTH came with me to have a tour of Mayflower Village. It was only a half hour drive from our place, less than 20kms. I liked that he would get his own room that comes with a bed and bedside table, and a chair, hopefully. We would need to get the rest of the furnishings for him, but that won’t be too much of a problem. He will have to share the bathroom, but that’s being renovated at the moment, so he will have a nice, new bathroom to use. The dining facilities looked really nice, and the menu options were good. All the food is prepared on site, and will keep him healthy. There are plenty of other residents there, so he’ll never get lonely, and Dad makes friends easy enough, he just doesn’t always share well, which is why his own room is important. Now I’m just waiting on some paperwork from Centrelink, then I well be able to complete his application and have that all done and in in time to secure the room. I think he will be happy there, and I will be able to see him at least twice a week so that is something that I am really looking forward to. We really need to get him out of hospital as soon as possible and into this hostel kind of arrangement.

Anyhoo, that’s enough from me for now. I’m still buggered, and I’ve got more to do. I’m planning housework tomorrow, and a jewellery party later in the day. We’ll just have to see how it all goes. Until next time, tell your loved ones just how much you love them.

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Decisions made…

It was wonderful to see Dad again this week, and see how much he has improved. He is walking so much better, but still tiring on the stairs easily. He managed to walk around to the kiosk at a good pace to go and get lunch with me. His memory is coming back, but he still struggles in conversation, trying to find the right word. He does get frustrated with himself, but I guess that is to be expected. He’s still in the locked up section of rehab, so obviously he’s at risk of wandering and they still want to keep a close eye on him.

We both had burgers for lunch, and I know he really looks forward to that when I come in. Just before we went to lunch, the diabetes nurse had a good talk to us and organised for him to have a new blood testing kit, which was really good. He has since been checking his own sugar levels and recording them for the nurses to check. He’s also off the insulin now, so hopefully things will be okay on that front and we won’t need to add injectables to his NDSS card.

I stayed in Katoomba overnight at my friend Lisa’s house and we had an awesome night. She cooked me an awesome steak dinner with lots of steamed veggies and it was just divine. She had to go into Katoomba hospital herself for surgery on Thursday to have the rest of her teeth removed, so she wanted a good feed the night before too. We sat around talking and having a few beers and it was a really lovely night. The next morning she was up at 5am to have breakfast before she had to fast. I got up too, and got to watch the sunrise, which was absolutely beautiful.

Back at the hospital on Thursday, I took Lisa around to day surgery before going in to see Dad. It was his lunch time and they were bringing him his food, so I ducked back to the kiosk for a coffee and sandwich. When I got back to Dad, it was time for physiotherapy, so we went for a short walk outside the hospital. He says his feet really hurt him, but that’s because he spent so long in bed that everything needs to get working properly again. The physiotherapist went to help him as he stepped up gutters and the like, so obviously he’s still concerned about Dad’s ability to manage steps.

We had a family conference at 3pm. Allan and Julie were there, as was Dad and all the people involved in his treatment. The object of the meeting was to determine where Dad was going from here. He is not well enough to live independently so that means he cannot go back to living with Allan and Julie, as they are gone for 12 hours a day for work, and they are usually busy on the weekends, so are unable to provide the assistance that Dad will need. I suggested that if I had the space I could look after him, but the Social Worker immediately kyboshed that and said that he needs to go into a nursing home. He will have his own room and bathroom, but will have a dining room to go to for all his meals. Hopefully we can find him a place where he will still be able to do a bit of gardening, that’s what he’s talked about the most while he’s been in hospital. He was also told that he no longer able to drive, but he just said “point me to the nearest train station”. I would be very worried about him getting out and about on his own, He will have the ACAT assess him on Tuesday, then we will be able to look for a place for him, hopefully between Parramatta and Penrith (maybe hills district).

So, that is where we are at now. I’m not sure how Dad is taking all of this, but I’ll be able to talk to him about it when I see him again on Wednesday. I think he was more worried about me getting him a ticket in tonight’s 21 million lotto draw than all of what had just happened. I think he needs time to process all of what was said. He knows we’ll still visit him all the time, but I’m sure this was a huge let down as he was expecting to go home on Thursday. The Social Worker said to him that was never the plan, but again, I’m not too sure how much Dad took in. As I was leaving, he got me to come back to his room, just to ask me about the lotto ticket. I made sure we got him an autopick this morning. It would be nice if it came in for him, but I doubt it. It sure would be good to get him his own place with his own private nurse!

Making Progress….

Did the big trek again on Wednesday to see Dad at Katoomba Hospital. He is getting so much better, something they were saying we might not see. He was in physiotherapy when I got there and he was doing really well. He’s still quite weak, and you can see he has a bit of a struggle when it comes to steps, but he’s actually walking now instead of shuffling, albeit slow. He also appears to be losing weight still, which is a good thing. He doesn’t have the huge appetite he used to have, so that is really good. It’s still hard to get him away from sugar, especially soft drinks, as he hates those “diet” soft drinks. He doesn’t drink enough water though, so they are giving him small bottles of diet lemonade with each meal to try to encourage him to drink a bit more.

The food in rehab looks and smells lovely, and he has been enjoying it. I think he also likes going to the dining room to eat, it’s a bit social even if it’s a bit degrading putting a huge bib on to eat. I suppose that’s better than being grubby, or having to change after each meal. The portions are quite generous, and everything is balanced to keep his sugar levels under control, which they seem to have done.

The wound on his neck is much better, finally healing. It looks a bit rough, but that’s not surprising given how much he picked at it from the start. They couldn’t tie his hands down forever, but now that he has more of his faculties, he seems to be leaving it alone. He’s been enjoying watching the Commonwealth Games over the past week, so that has been keeping him occupied, along with the books I have taken to him. I don’t know how much he’s reading, but talking to him about the story line he knows what is going on in what he has read, which is awesome.

My dear friend Lisa came and visited while I was there, and Dad got a little teary on seeing her. I think he was just feeling a little overwhelmed, but that soon passed. They had a good catch-up, and she will be popping into the hospital when she can to keep him company. I am so blessed to have a friend like her (as I am with my other friends), she has been awesome. I will be staying at her place in Katoomba next Wednesday, so I’ll get to see Dad twice. She has her own surgery to deal with next Thursday, but at the same hospital that Dad is in. I can’t thank her enough for all she is doing for us.

It’s a long trip to do in one day, so I will be grateful for the stop over next week. I can’t believe how exhausting 3 hours travel each way is. It totally wiped me out. I spent yesterday doing almost nothing, just had no energy or motivation to do anything, but did manage to cook a nice dinner for us so the day wasn’t completely wasted. I’m not happy about only going once a week, but I really can’t manage more than that. Dad is happy that I come each week, I just wish I could do more. Next week will be 2 visits, so that’ll be good. I’m also going to cut his hair for him next week, so I must remember to take the clippers with me.